Akademik Veri Yönetim Sistemi
Scottish Renal Association Conference, Saint Andrews, İngiltere, 15 - 16 Kasım 2024, (Özet Bildiri)
People in deprived communities develop kidney disease earlier, experience less proactive care, and progress more
rapidly towards kidney failure1. The KINDER study (Kidney Inequalities: Needs, Data, Experiences, Response) aims
to address inequalities in kidney healthcare in Scotland, with a specific focus on the diagnosis and access to early
kidney care for people of working age. Using mixed quantitative and qualitative methods, the project seeks to
understand the factors that contribute to these inequalities, assess the impact of kidney health on socioeconomic
circumstances, and identify strategies to mitigate or reduce inequitable care. Here we report the initial development of
the quantitative component of this study.
Existing observational studies of the equity of kidney health and care (both in the UK and elsewhere) have limitations
of insufficient detail and population coverage2,3. Previous studies are often limited by use broad area-level measures
of deprivation opposed to individual or household level measures of social disadvantage, or reliance on prospective
recruitment that can lead to selection biases. This is problematic because people from deprived households can live in
affluent areas, people from affluent households can live in deprived areas, and people may also experience
disadvantaged access to care for other intersecting reasons such as sex, gender, ethnicity, religion, race, rurality,
transport, education, mental health, social isolation. This lack of detail makes it difficult to develop and adapt policies
and ensure they meet those in greatest need.
For the KINDER study, we have developed a new dataset (GLOMMS-CORE), by linking a large population cohort
(GLOMMS) to core and social determinants information from the Scottish census (CORE)1,4. To our best knowledge,
this analysis is the first study linking the kidney health of a whole population to Census records. The dataset covers
>100,000 records of people with new presentations or progression of CKD or AKI between 2011-2020.
90% of people completed the Scottish census1, which covers information on individuals, their household composition,
employment, education, qualifications, ethnicity, language, wellbeing and living circumstances. With this new dataset
we intend to explore the bidirectional relationship between the experience of kidney disease and deprivation. For
example, among 48,546 people presenting with new kidney impairment (eGFR <60) in GLOMMS-CORE,
neighbourhood and household information provide different and complementary long term prognostic information